For me, it’s disappearing. That someday something will happen to me and no one will ever know what it was and where I am. That I will become one of those mysteries you see online and on TV shows. Whenever I think about it I feel nothing but dread.
For me, it’s disappearing. That someday something will happen to me and no one will ever know what it was and where I am. That I will become one of those mysteries you see online and on TV shows. Whenever I think about it I feel nothing but dread.
See https://lemmy.world/post/18437211
That is awful, Celiac’s (and really any autoimmune disease) is no joke. I see a lot of parallels reflected in their post and I truly hate that for them so much - constantly struggling to find foods that you can tolerate, having numerous surgeries, seeing a million different doctors, being in and out of the hospital all the time to the point that its a second home, lab test after lab test that only result in more questions than answers, symptoms and other issues spiraling up due to complications of going through the condition - you name it.
I feel for them, every day feels like you’ve got the curse of Sisyphus. I feel like there has to be a solution for people like them and I, and its unfortunate that there is just so much about the body and its various systems that we don’t understand. I constantly struggle with the idea that we’ve come so far with the sciences, and yet it feels like in matters of human physiology like the GI, immune, and nervous system we’ve barely scratched the surface.